Sabastion inticiate playing with the new shape sort. Mom and Dad were both very excite at this new deveolpment.
Tuesday, May 31, 2005
Monday, May 30, 2005
ABA Resources for Recovery from Autism/PDD/Hyperlexia We had our initial interview with our ABA therapist. We are realy excited. We are starting with eye contact. If you are intrested in ABA fallow the link above for more info.
Wednesday, May 25, 2005
150 Parents of Autistic Children Launch Organization, Ad Campaign with
Stunning Message: Removing Mercury Reverses Autism in Kids
SAN FRANCISCO, May 24 /U.S. Newswire/ -- More than 150 parents of autistic
children launched a new nonprofit organization, Generation Rescue, today
with a full-page advertisement in USA Today bearing a stunning message:
autism is preventable and reversible. Generation Rescue parents are
successfully treating their children biomedically and removing mercury from
their bodies through a safe and proven detoxification treatment known as
chelation therapy.
The organization's Web site,
treatment information and connects parents with more than 150 "Rescue
Angels," parents who are successfully treating their own autistic children
using a variety of biomedical interventions individualized for each child.
Also announced was the availability of 1,000 parents around the country to
talk to media about the reversal of autism in their children.
"Our message for parents is very simple: autism is reversible," said J.B.
Handley, one of the organization's founding parents and father of a son
diagnosed with autism. "I see every day with my own eyes how my son Jamie
is recovering from what was previously perceived as an untreatable
disorder. With the removal of mercury, Jamie's autistic symptoms go away.
He got a second chance at life, and we want to let other parents who are
struggling out there know it's possible to get their children back."
Charlie Hoover's 7-year-old son Lenny of Royal Palm, Florida, suffered the
classic symptoms of autism - spinning in circles, repetitive behaviors and
tantrums. "After Lenny's diagnosis, the more I read, the more the knot in
my stomach tightened," said Hoover. "It was as if our son had died."
But after chelation therapy rid Lenny's body of mercury, his symptoms
disappeared. Lenny, who loves to play T-ball, is now enrolled in regular
kindergarten. "If your child got lead poisoning from eating paint chips,
you would certainly do something about that," Hoover said. "What's the
difference between mercury and lead?"
The Centers for Disease Control (CDC) estimates that more than 1 in 166
children are diagnosed with autism, up from 1 in 2,500 since the 1970s.
According to the CDC, autism is a life-long disorder that is not treatable.
"For years we have heard the experts say that autism is a lifelong
disability. This simply is not true anymore, thanks to effective biomedical
treatments that can restore many, if not a majority, of autistic children
to full recovery," said Bernard Rimland, Ph.D., Director of the Autism
Research Institute and co- founder of Defeat Autism Now! (DAN!), a network
of doctors throughout the country who treat autistic patients.
"Thousands of formerly autistic patients have shed their autistic symptoms.
They now relate normally to their families and to other children. The
hand-flapping is gone. The tantrums are gone. Most of these children who
used to be lost in their own worlds are now indistinguishable from other
children."
The Autism Research Institute has nearly 1,000 parents nationwide who are
available for media interviews about their successful biomedical treatment
of their autistic children with DAN! doctors (contact
"Our DAN! doctors determine what each individual child needs, then use safe
biomedical interventions to heal that child. Many DAN! Doctors report
excellent results from using chelation to rid the body of mercury and other
toxic metals," said Dr. Rimland.
Recent studies and investigations have indicated that mercury may be behind
the autism epidemic. Mercury, the second most toxic element after
plutonium, is estimated to be 500 to 1,000 times more toxic than lead. The
heavy metal burrows deep into the cells of the brain and other organs and
can lead to serious central nervous system damage and crippling
neurological disorders. Scientific evidence pointing to mercury poisoning
as the cause behind rising autism rates has led many medical doctors to
remove the toxin from the bodies of autistic children through chelation.
"The symptoms of early infant mercury poisoning and autism are virtually
identical," said Dr. Boyd Haley, chairman of the chemistry department at
the University of Kentucky. "Furthermore, research indicates that autistic
children genetically have a harder time excreting mercury from their
bodies. This is why chelation has become such a powerful key for unlocking
and undoing the disorders associated with autism."
Chelation has been used for decades to detoxify people of dangerous levels
of heavy metals, due to industrial accidents or other causes. According to
the CDC, 60,000 Americans underwent some form of chelation last year, and
the therapy is currently under clinical trial with heart disease patients.
In autism treatments, chelating "agents" may be administered orally or
transdermally (through the skin). Once in the bloodstream, the chelating
agent binds to heavy metals and helps remove them from the body.
"Chelation is one of the most effective ways to rid autistic children of
the mercury poisoning which is at the root of their disorder," said Lynne
Mielke, M.D., a Pleasanton, California physician, who is part of the DAN!
network. "The medical establishment already endorses chelation for acute
metal toxicity disorders, and the number of doctors who realize chelation's
benefits for the chronic metal toxicity found in autism is rapidly growing."
Parents are also eager to help fellow parents navigate the road to
treatment for their autistic children. The Generation Rescue Web site,
contacts for more than 150 volunteer "Rescue Angels," who Handley calls the
"heart and soul" of Generation Rescue. "We're parents who want to help
other parents caught in the nightmare of autism find hope and recovery for
their kids," said Handley, who added that the organization is completely
founded, funded and run by parents. "Too often parents believe the outdated
myth that autism is not treatable or reversible. We're here to tell them
otherwise."
Biomedical treatments for autism require the support of a specialized
healthcare provider who can tailor treatment to the individual needs of a
child. While chelation therapy shows great promise, there are many
biomedical treatments being used to heal autistic children.
To view the ad, visit:
About Generation Rescue
Generation Rescue is a nonprofit organization formed by parents of children
diagnosed with autism and other development disorders. Through thorough
research, medical consultation and the use of pioneering new medical
treatments, the founding parents of Generation Rescue have seen tremendous
improvements in their autistic children-including complete recoveries.
Generation Rescue's mission is to provide parents the information and
support to understand the cause of autism and treatment options. The Web
site,
parents the background to make informed decisions about treatment and
connects them with "Rescue Angels," parents of autistic children who
voluntarily provide support and guidance on treatment options and
providers. Generation Rescue is a 501(c) (3) nonprofit founded in 2005.
About the Autism Research Institute (ARI)
Established in 1967 by Dr. Bernard Rimland, the San Diego- based nonprofit
is world headquarters for research and information on autism and related
disorders, and the center of a rapidly growing movement that holds that
autism can be treated effectively through intensive behavior modification
and a variety of individualized biomedical treatments. ARI maintains the
world's largest databank of autistic individuals with over 37,000 detailed
case histories of autistic children from 60 countries, and is a major
source of information on the epidemic and its causes. ARI also helped
develop the Defeat Autism Now! (DAN!) project to train physicians and
healthcare professionals on successful treatment of autism. ARI is a 501
(c) (3). For more information, contact 619-281-7165 or visit
Click here for a link to a one hour press conference (audio), and a
full-page ad in the Wednesday, May 25th, 2005 edition of USA Today:
http://www.generationrescue.org/mediacenter.html
May 25, 2005
I am sorry for not updating for a few days. The 23rd started at 1:30am in the morning. It continued to be a ruff day. Yesterday, I was having computer problems. I am here today, but only for a few moments. Sabastion's OT came today. He did the shape sorter toy with her. This is a big step. I know many would not think so, but it is. One it is not one of his toys. Two he has never realy shown any intrest in it and when presented with it would cry, buck and scream. Third he got the cirle and square in with very little trial and error. He did become frustrated, but for only a few seconds. This is a huge step. I cried. The OT cried, but she played it off better than I. I am excited. This is truely a step I needed to see right now.
Tuesday, May 24, 2005
Sunday, May 22, 2005
May 22,2005
6:15am wake up rice bottle.
8:00am 2GFCFSF pancakes 2peices bacon 8oz rice bottle
8:58am dirty diaper. Sabastion's BMs are very small now and have a yellowish color to them. Also this one was mostly liquid and he had a bit of irritation on his bottom. Put zinc on it.
note: Speggetti squash
9:46am began to show a bit of intrest in large ball we purchased for therapy. He screamed bloody murder every time we even went near it. We never used it. He just banged his hands on it a couple of times and walked away calmly, and sat by me for a moment.
10:30am I left the living room for a few minutes. When I came back in a smelled poop. I thought it was one of the animals. To my dismay it was none of them. It was Sabastion. He had it smeared all over his face. I took him to the bathroom, stood him on his chair and washed him up. It worked well. He was discracted by the running water.
11:30am lunch...instant mash potatoes made with rice milk. 4oz apple sauce, and a cookie. rice milk.
12:11pm he is very sleepy....rocking and crying.
12:30pm went to sleep
2:00pm woke up an went back to sleep on my lap. Granpa D. came to visit.
3:20pm woke up and sat with Grandpa D. Had rice bottle outside with Grandpa D. They played fallows the leader for a time.
3:50pm Offered cookie. He took it but did not eat it. Gave him a choice between Dora and Baby Neptune. He choose Baby Neptune.
6:30pm he ate a half of a can of ground green beans. 8 oz rice milk.
7:30pm bath was loud and screaming.
8:45pm went to bed
May 21,2005
Craig got up with the boy this morning. I am very head achy and soar all over. I hope I am not coming down with anything.
I got up about 8:00am and Craig was feeding Sabastion OatMeal and Apple sauce. We have run out of rice milk. We have to go to Melbourne (south of us) to get some groceries for him. I need to find bread and we need to by rice milk by the case. Ok, let me see....
10:20am diaper change and clothes change...Joy!
11:00am went to Wyld Oats....Found chocolate cookies. Sabastion loves them. Chicken hot dogs. Again, he loves them and he never liked hot dogs before.
1:35pm Sabastion still has red checks, but the dark circles are gone. Craig went to nap. When he gets up I will make bread. We are trying Bob's red mill.
I am reaing the Bread recipies and an very excited to try them. The book says that 10% of blood relitives are also glutain intalorant. We should probably get checked.
5:00pm Sabastion gets up from nap. I can not remember what time he fell asleep. I want to say 3ish. I gave him rice milk.
6:00pm dinner GFCFSF macaroni chicken and maranara. Rice crackers. He did not like them very much. Chocolate cookies are such a hit! rice milk is very good too.
9:20pm we are still up. Bottle and white noise are going to be used.
Subject: RE: Soy free Chocolate?
Enjoy Life Foods Semi Sweet Chocolate chips are soy free and you can melt
them down to create your own shapes or delights.
10:00pm ok good night....
Saturday, May 21, 2005
may 20,2005
6:00am Sabastion wakes up. He takes craig to the bathroom and wants to wash his hands.
6:25am He his given a choice between Blues clues, Dora, and Baby Einstien. The third is the choice. While it is playing he leaves the room and heads tward his room. I hear splashing. The bathroom dorr was left open. Sabastion is playing in the tiolet. At least it was flushed. I wipe up his hands and lead him back to the living room.
This was an email that circulated recently just for your information:
Commonly Prescribed Antibiotic Implicated in Autism In a study released this
week, the antibiotic Augmentin TM has been implicated in the formation of
autism. The study published in Medical Hypotheses strongly suggests the
possibility of ammonia poisoning as a result of young children taking
Augmentin.
Yonkers, NY (PRWEB) January 5, 2005 -- In a study released this week, the
antibiotic Augmentin TM has been implicated in the formation of autism. The
study strongly suggests the possibility of ammonia poisoning as a result of
young children taking Augmentin. Augmentin has been given to children since
the late 1980's for bacterial infections. Composed of amoxicillin and
clavulanate potassium, Augmentin has proven a potent antibacterial,
especially for ear infections which quickly become resistant to amoxicillin
alone.
The manufacture of AugmentinTM involves the fermentation of clavulanic acid.
The fermentation process involves large amounts of urea/ammonia. Ingested
ammonia can potentially injure the intestines of small children as well as
brain and nervous tissue. Even a small residue of urea/ammonia can
potentially induce a substantial brain inflammation or abnormality.
The study, published in Medical Hypotheses, (2005 64, 312-315) examines 206
children under the age of 3 diagnosed with autism. These children were found
to have a significantly higher number of ear infections than the general
pediatric population. These same children received, on average, 12 courses
of antibiotics representing a sum total number of 2480. Of the 2480, 893 of
these courses were Augmentin with 362 of those given under the age of 1
year.
Dr. Joan Fallon, scientist, autism researcher and author of the study,
states that, "Augmentin is one of the most widely prescribed drugs for
children. Its introduction into the marketplace for use in the treatment of
childhood illnesses corresponds with the significant increase in the
incidence of autism. It is possible that some children, especially those
with immaturity, or others at risk for developmental disorders can be
injured by taking this drug. It is imperative that further research be
undertaken to determine if a subset of children are at risk for
neurotoxicity due to the use of clavulanate or clavulanic acid in
pharmaceutical preparations - especially Augmentin."
###
Contact Information
Dr. Joan Fallon
914-779-9300
6:45am Rice bottle
7:00am trows up about two or three oz. very much mucus looking. I just read rice dream was bad. That is the brand I was giving him. I guess I need a new brand.
The one thing I have learned the hard way is no matter how much you want to help your child you literally need to start one thing at a time and start very small and work up. Do not start any new vitamins or minerals or anything else while starting on the diet. Once stable on the diet add one thing a time slowly to see how your child does. Keep notes about everything, food, sups daily activities , etc. Also if at all possible stay away from soy milk, since the body processes it similarly to Gluten and casein. I allow soy I just do not allow it as a main sub for other stuff.
HTH,
Shannon in Oceanside, CA
Fighting for one child, in hopes it helps another child.
~Doing the best I can with the hand I was dealt~
10:30am OT came over. He threw the worst tantrum. I have never seen him do that. Kicking, screaming, bucking, banging. It was awful.
11:00am he fell asleep
1:30pm he woke up. I gave him a PBJ..he was so hungry and we need to shop more. I feel a little bad, but he seeems Ok right now.
2:25pm Watching Blues clues. Jumping slightly.
4:23pm Sabastion has very dark circles under his eyes. Also his checks are getting splotchy. I am convinced it is the bread. I gave him another rice bottle.
5:30pm oatmeal applesauce
We have to be careful. Sabastion can reach realy far and high for his age. He grabs things off the table. Today he grab Uncle Pucks coffee. Thank goodness it was cold, beacouse he dumpedit on his head. I had a cherry Coke on the table. He took it off and carried it to the kitchen where he tried to drink it. He almost had the hole lined up with his mouth. Half went down his front.
9:30am sleep
Thursday, May 19, 2005
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